Monday, April 28, 2003

Tom Petty was right: It's the hardest part (updated again)
The Young Daughter was diagnosed with the dread disease in October 2001, on her first birthday. Since then, we've learned more than we ever wanted to know about navigating the United States health care system.

She had her semi-annual MRI today. They're looking specifically at an optic glioma behind her left eye. We won't know until Tuesday at the earliest what they actually saw. We need for it to not have grown since October, when it was discovered in her previous MRI. We need for no new ones to be present.

An MRI is not a pleasant experience for a small child. First, there's the general anasthesia. At the exam in October, they had to triple-dose her to get her to the state of deep sleep necessary to keep her completely still for an hour. She wobbled around like a drunk for two days, I'm told. This all happened during the time when I was on the Edge and the rest of the family was still in Texas.

This time, they had a much easier time with the anasthesia -- they gave her a different type of medicine -- and by 6 p.m. tonight, she seemed to be on the upswing. Then I walked by where she and The Wife were laying on the couch, and patted the Young Daughter on the head. "Does she feel warm to you?" I asked, casually. "Yeah," said The Wife. We asked the thermometer for confirmation. It said 104. Yeah, that's warm.

This particular anasthesia wasn't supposed to have this particular side effect, according to our discharge papers.

So, it's Us vs. The System. We called our pediatrician, and left a message with the service. We called the hospital downtown, where the procedure was performed. All the people involved had gone home for the day, and nobody wanted to answer our questions. The person on the other end -- not a nurse, from what I could gather -- told The Wife, "If it were my child, I'd take her to the hospital." Hey, thanks for the tip.

After waiting a few more minutes for the pediatrician to call back, The Wife and the Young Daughter went on to the hospital -- the one out here in the 'burb, not the one downtown. As of this writing, four hours later, they're still there. I'm here with the other two kids, who are peacefully asleep. The Wife has called twice to assure me that everything is basically OK -- "they've given her Tylenol, and her fever's down a bit, and they'll see us eventually."

They wait. I wait. I'm sure everything's OK; she's just reacting to the medication. Our kids, like The Wife, tend to run high fevers when they run fevers anyway. A reading of 104 is barely past "cause for concern" in our house.

But they wait. And I wait. And we're not even to the part where we have to yell at the insurance company.

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11:20 a.m. Tuesday update:
The Wife and the Young Daughter made it out of the emergency room around 6 a.m. -- approximately 11 hours after they arrived. Apparently they had a full house in the ER last night, and my kid's high fever was less of a priority than the car accidents or potential SARS cases or whatever the hell they were seeing.

After 11 hours in the ER, they left with this: "Might be a urinary tract infection."

Excuse me. She had an MRI under general anasthesia nine hours previous. You're saying that she picked up a uninary tract infection out of the blue? The Wife reported that even the doctor wasn't convinced. But it had been a bad 11 hours in the ER for everyone involved, apparently, including the medical staff. I suspect this physician didn't want The Wife to leave with nothing, so he came up with his best guess.

I'm frustrated, and I wasn't the parent who had to spend 11 hours in the emergency room last night with a 2-year-old. Amazingly, the 2-year-old was the most calm of all the parties involved. When they came home, the sun was rising, and the Young Daughter was her usual cheerful self -- just like she had been all day.

Nobody told her she had been awake all freakin' night. Nobody told her she should panic. I wish they had forgotten to tell me.

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4 p.m. Tuesday update
The Young Daughter's pediatrican made the ruling: Aspirated pneumonia. Kind of like a urinary tract infection, only completely different. Suspected cause: She vomited while under anathesia, then inhaled it. I hope it sounds worse than it is.

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